tag:blogger.com,1999:blog-6426202096598051070.post3045920736274888446..comments2024-01-04T09:23:45.843-05:00Comments on Watching the Lights Go Out: Why Not Try This?David Hilfiker http://www.blogger.com/profile/00479949692410414480noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6426202096598051070.post-61315840194432117962013-06-08T14:41:12.863-04:002013-06-08T14:41:12.863-04:00I might have to agree with you on this. My Mom too...I might have to agree with you on this. My Mom took two different AD pills. But after just short period of time we could tell it most likely did not work and may have caused other problems. Her Dr 's advice to me was " you can take it and hope it works or look at it like do you really want to prolong these stages because some are nit good" and he was right, it was not good for her and wad not good for us trying to take care of her. We stopped the AD drugs and did put her Resperdol and Ambien. Mainly for her to stay calmed and get sleep at night. She would go 20 hours with no sleep. And was pretty mean without the respectfully. And she had been taking Seroquel and when we increased that to help her get rest before the Ambien & respectfully, she kept getting worse with behavior. So we stopped that and started the other two. I took care of her for eight of the ten years the AD was obvious. She was a handful. But would do it all over again. She passed away in Oct 2012 I love reading your blogs. I still want to learn about AD and maybe reading your Blog may help me understand more of what she felt and went through. Thank you. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6426202096598051070.post-2528395098587680722013-04-25T18:06:50.024-04:002013-04-25T18:06:50.024-04:00I had a brief taped interview on CBS This Morning ...I had a brief taped interview on CBS This Morning today, so I've been overwhelmed again but emails and comments. So many of what people send me(including three phone calls this morning before I took my phone number off my website) is the wide variety of possible cures and treatments. I am grateful for the concern they show, but until there are double-blind placebo trials that show effectiveness, I'm not going to spend my time running each possible lead down. I hope to write a more comprehensive post on this in the near future.David Hilfiker https://www.blogger.com/profile/00479949692410414480noreply@blogger.comtag:blogger.com,1999:blog-6426202096598051070.post-90552728098424958882013-04-25T10:47:41.410-04:002013-04-25T10:47:41.410-04:00Yes! While I will shortly be engaged in a clinical...Yes! While I will shortly be engaged in a clinical trial for LMTX, took part in a brain imaging study, currently take Donepezil and Namenda as there are some indications in some studies that use of these can slow the progression in early stages -- in other words, while I will do what I can to help in the research and yes -- I sure hope we find a solution soon -- I am not searching for a cure.<br /><br />Yes, I tried coconut oil in my initial desperation after the diagnosis. But due to some rather embarrassing 'side effects'??, I now use it as I did before -- great for high heat stir fries and hand cream!<br /><br />I have chosen a vegan diet, because both my mother (who died from AD) and I have very high cholesterol levels. She was vegetarian, but used a great deal of dairy. So I am vegan partly because of the cholesterol issues (and some studies indicate there might be a link) -- but mostly because I don't want to harm 'sentient beings.' Plus I my body just FEELS a whole lot better!<br /><br />And yes, I've increased my exercise -- oxygen is good for any parts of my brain that have not been damaged!<br /><br />So while there are steps I can take be help my body, I now take those steps regardless of the AD diagnosis. As you said: "I know that I must recognize my limitations and not struggle against them." -- that is the key. meganthemeganhttps://www.blogger.com/profile/03320065941391199180noreply@blogger.com