Washington DC
I’m reading mostly novels these days. For most of my adult life, I’ve read serious
non-fiction: politics, religion, economics, philosophy, and so on. I might have read two novels a year if
someone pressed them on me. I still do
read an occasional non-fiction, but I’m trying to spend most of my reading time
with novels.
Part of it is that I have a little trouble staying
with fairly abstract readings (as I mentioned in Abstractions
a couple of weeks ago). Another part is
that I just don’t find myself as interested in the intellectual world any
more. (It doesn’t help, of course, that
our national politics has become so dysfunctional, corporate power so
overwhelming, media so subservient, the free market so dominating, and
consumerism so unexamined … whoops, there I go again. Perhaps I’m not so disinterested.) Intellectual work is getting to be less and
less a part of my self-identity. That
phase of my life seems to be over: Been there, done that! I’m not even reading much about Alzheimer’s.
But perhaps the most important part is that I just want to read novels. They’re usually less abstract, of
course. They tell stories of people who
are different from me. They speak to my
heart, not just my head. It’s part of
the increasing emotional openness I’m experiencing. I greatly look forward to my reading time
just before bed. Fortunately, I don’t
have a set time to get up every day: A novel can keep me up hours past my
bedtime.
I don’t ordinarily read children’s books. But seventeen-year-old Max Wallack sent me
the little book he authored: Why
Did Grandma Put Her Underwear in the Refrigerator? It was short, so I
looked at it.
It’s a great book!
Seven-year-old Julie is the narrator, but even older children who are
faced with someone who has Alzheimer’s will find it helpful, I think. Grandma comes to live with Julie’s family. Not too long after, Julie notices that Grandma
is starting to lose things. Julie’s
worried she might be responsible for Grandma’s trouble; maybe Julie’s own
messiness has caused the problem. Her
mom explains simply that Grandma can’t remember because she has Alzheimer’s
disease. After Julie finds Grandma’s
panties in the refrigerator, she asks her mom about it. She’s afraid Alzheimer’s might be
contagious. Her mom reassures her and
describes very briefly the neuronal dysfunction in Alzheimer’s. The rest of the book follows the deepening and
wonderful relationship between the Julie and her grandmother.
Although I’m much earlier in the disease than Grandma,
the book reminds me of my relationship with my grandchildren. My daughter
told them I was having trouble with my memory, which didn’t seem like a big
deal to them. When I’d lose something or
forget how to play a game, they’d sometimes ask me matter-of-factly: “Is that
your memory problem?” I’d say, “Yes” and
that was pretty much the end of the discussion.
We don’t need to protect our children from Grandma’s
diagnosis. If you’re okay with it, they’ll be
okay with it. And, at least for the
younger children, Why Did Grandma Put Her
Underwear in the Refrigerator? might be a good way to start the
conversation.
Recently, I've told others about this great book on Grandma and her underwear. Children don't care how abled or disabled their grandma's are, they care about the love they feel.
ReplyDeleteI've never been much on novels myself, but I remember the movie Persuasion where Jane Austen's lead character, Anne, told a forlorn Captain Benwick that he might want to sprinkle in some less romantic poetry to his daily readings. So, last Friday I attended a book launch of a local author whose advertisement so interested me I had to attend. Her book "Ashoan's Rug" was a fun adventure of stories; so much so I thought they were real and so did the audience. I never buy novels, but I bought this one, and it may be just the ticket for some fun, interesting reading which will compel you to climb in and experience the traveling rug.
Hi David, I have a quick question about your blog, could you email me when you have a chance? Thanks! -Cameron
ReplyDeleteLove this book recommendation and will check it out! Cheers to you.
ReplyDeleteWow! How interesting! I am married to a 67year old retired bank president with alzheimer's, so this blog really caught my attention. Looking forward to future posts. Thank you for sharing!
ReplyDeleteThis certainly is a fact of life today Love reading what you have written looked after my dad in the later stages I was very fortunate to have had that time with..he always knew who I was..take care
ReplyDeleteMy father has this horrible disease; was diagnosed only a few years ago, however, I noticed tell tale signs close to 17 years ago. My dad is almost 82 years young, a Holocaust escapee, but now imprisoned by this disease. We need a cure!
ReplyDeleteHi David, This is definitely a new chapter in your life. I met you when I worked for awhile at the Community of Hope law office years ago. For the last four years I've been spending a lot of time living with my mom who has Alzheimer's. When people ask me how she's doing. I say she's doing great! She even started playing golf again at age 88. When I'm not with her we have caregivers and I encourage them to take her out on the town as much as possible to do things she has always enjoyed. It seems to be working because she is in good spirits almost all of the time. We do everything we can to be positive and live in the moment.
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