It’s getting worse … and much more frustrating. Trying to work out what should have been solutions
to some spreadsheet problems that I thought should have been pretty easy were
not.
Similarly, I realized that I had misprinted and wasted
two batches of bookmark strips printed with the year’s lectionary scriptures (which
I’ve been making for the church for many years) and printed another set in
which the front was mistakenly identical to the back. Eventually, I caught all of the mistakes, but
only after wasting much ink, expensive card stock, time, and patience.
Now, I could have made perhaps one of those mistakes
before my impairment, perhaps even two.
So I can’t attribute any one mistake to the Alzheimer’s, but taken
collectively, it’s obvious. Trying to
know which mistakes are really due to the illness is a useless task (that I
nevertheless keep attempting). It’s sort
of like attributing any specific weather event to global climate change. Any single event, no matter how extreme,
might have happened without climate change but the aggregate cannot be
misinterpreted. Any particular one of
these mistakes I’m making could be just a normal mistake, but the aggregate
points pretty decidedly toward progressive disease.
How long can I responsibly hold on to these responsibilities
I’ve carried at church? In most cases, like
the lectionary strips, either I or someone else will discover and correct the
mistakes without important consequences.
But, especially in bookkeeping, mistakes can be more serious. I don’t want to give the responsibilities up
because they are important elements of belonging to the community, but at some
point it will obviously become necessary.
The same thing is true about my driving. At what point will my capacity to drive be so
limited that I can’t drive well enough to keep my license? Over the weekend I drove a 3½-hour trip into
Virginia. I thought I might be feeling a
little but spacey, but that may have been due to the lack of sleep and all the
Coke I’d been drinking to stay awake.
But I noticed nothing unusual on the way back. When I do have to give up my license, it’s
going to be very painful.
How will I decide these things? For something like driving, I certainly can’t
wait until other people start noticing.
For other things, like bookkeeping, the mistakes might be relatively
serious but ultimately correctable. For
others, like printing lectionary strips, there’s no real reason not to wait
until others notice. I certainly want to
forestall giving up some activities as long as possible. So far I’ve had confidence in my
judgment. But a loss of judgment is itself
another of the symptoms of Alzheimer’s.
Tuesday night, I took another trip into Virginia, driving
down to Richmond to do my annual talk to a college class at Richmond
University. The professor who invites me
down always asks for the same talk: a brief discussion of my medical mistakes
article, a description of my work in the inner city, a description of the
history of the ghetto, and a discussion of the criminal justice system and its
impact on the poor. Rather than
depending upon a lecture (which has never worked as well with this particular group),
I decided this year to spend most of the time in discussion, so I broke my usual
speech into a number of different parts, shortened each of them, and developed
some pretty good discussion questions.
I thought it went well. The students seemed very appreciative. The professor later confirmed my judgment from
her point of view. I wasn’t nervous and
I felt very much “on my game.” It was a
great ego booster in the midst of all this unpleasantness. It won’t last forever, of course, but that
area of my mind doesn’t seem to have been affected yet. It’s not a little thing!
And I’m very grateful.
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