I called my son Kai tonight to tell him. There was a long silence. And then he talked about how important I’d
been to him. (Even now, just shortly
after we talked I can’t remember his exact words.) But he was stunned. There were long silences as each of us
struggled for something to say. He told
me that he couldn’t really handle what I was telling him.
I felt his love and caring. He told me how much he looked up to me and
respected me. We both felt a sense of
immense loss. He’d assumed that I would always
be there for him but suddenly he realized his own mortality. We have never
had a conversation in which both of us expressed much emotion at all and
certainly nothing remotely like this. I
realized how much more painful this was going to be for Kai than I had
anticipated. And it touched something
very deep within me, too. I felt my loss
powerfully and emotionally, too. We both
cried. And neither of us ever cries.
It’s almost like he’d realized for the first time that
his life would not go on forever. He’d
been waiting all his life for the perfect job or the perfect woman, and now he was
beginning to see that he must choose and couldn’t wait forever. He’d been protecting himself emotionally from
the pain of intimacy. He’d been unwilling
to commit himself to a work because it would mean turning away from other possibilities. “I’ve wanted to keep my options open. I didn’t want to move into real
adulthood.” But he thought that learning
of my disease would turn him around. I
don’t know what will come of it, but it occurred to me that this could be a
turning point for him.
It was, by far, the most intimate encounter we’d ever
had. I am deeply grateful.
I feel overwhelmed by the prospect of the future;
every time I contemplate it, my stomach drops out. But once again, I am realizing the Now is
okay. In fact I feel privileged to have such
moments with my children.
One of my meditation teachers recounts visiting one of his former teachers. He’d heard that the monk had progressive dementia. When my teacher asked him how he spent the days, the monk answered, “Oh I just sit here and watch the dementia roll on in.” I believe that I know something of what he means. Will I be able stay so deeply in the present? This is not the tragedy for me that I would have expected. In fact, there seems the possibility that it will remain an interesting journey. What’s next to go? What will it feel like? What will it be like to be deeply demented? Will I retain consciousness of my “self” or will that go, too?
Of course, just to ask those questions requires a level of consciousness that I will lose. I’m at the very early stage of the illness. Likely these questions will lose their meaning. But, at least in the Now, it seems an interesting journey. As things go in this world, this is not a tragedy of Olympian proportions.
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